By Kisean Joseph
A grassroots movement in Antigua is emerging to support carers of those with Alzheimer’s and raise awareness about this often misunderstood condition.
It is being led by Susan Lowes, whose late husband suffered from dementia.
“It was clear there was a real need here in Antigua for support for people who were caring for those with dementia, which is a bit of a hidden disease on the island,” Lowes explained.
Recognising the isolation many caregivers face, she started a WhatsApp group that has quickly grown to include about 70 members, demonstrating the previously unmet need for such support.
After two successful Zoom sessions, the community recently held its first in-person gathering, reflecting the strong desire among caregivers to connect personally with others sharing similar experiences.
This development comes at a critical time, as global attention focuses on the challenges of dementia care, particularly in small island nations. Dr Gaden Osborne, a neurologist who recently addressed the group, highlighted the complexities of dementia, including its various forms and the importance of early detection.
“Alzheimer’s is the most common cause of dementia, accounting for about 42 percent of cases,” Dr Osborne explained. “Another 25 percent have a combination of Alzheimer’s and vascular dementia, which is particularly relevant in the Caribbean due to high rates of hypertension and diabetes.”
The support group provides a platform for sharing practical advice and emotional support. Caregivers discuss challenges such as managing behavioural changes, adapting home environments, and navigating the healthcare system.
One key topic of discussion has been the impact of familiar environments on dementia patients.
“We’ve noticed that taking patients out of their comfort zone can be extremely challenging,” shared one caregiver. “It’s a delicate balance between maintaining quality of life and managing the progression of the disease.”
The initiative also addresses the often-overlooked issue of caregiver burnout.
“Caring for someone with dementia is a 24/7 job,” Lowes emphasised. “Our group provides a safe space for caregivers to voice their frustrations, seek advice, and simply know they’re not alone.”
Looking ahead, the group plans to alternate between in-person and Zoom meetings to accommodate various needs and preferences. There are also discussions about expanding their reach to other Caribbean islands facing similar challenges.
The emergence of this support network highlights a growing awareness of dementia’s impact on families and communities in Antigua. It also underscores the need for more comprehensive healthcare policies and resources dedicated to neurodegenerative diseases.
As the population ages and dementia cases are expected to rise, initiatives like this become increasingly crucial. They not only provide immediate support to those affected but also contribute to broader societal understanding and acceptance of dementia.
“We’re creating a community of understanding and support,” Lowes concluded. “It’s about facing this challenge together, sharing our experiences, and helping each other navigate this difficult journey.”
For those in Antigua struggling with the challenges of caring for someone with dementia, this growing network offers a beacon of hope and a reminder that they are not alone in their journey.
World Alzheimer’s Day is marked on September 21 each year as part of global efforts to raise awareness and challenge stigma surrounding dementia.
